Advancing the genetic counseling profession through research: Identification of priorities by the National Society of Genetic Counselors research task force

Leigha Senter, The Ohio State University Comprehensive Cancer Center
Jehannine C. Austin, The University of British Columbia
Meghan Carey, National Society of Genetic Counselors
Megan T. Cho, National Human Genome Research Institute (NHGRI)
Stephanie L. Harris, Massachusetts General Hospital
Erin L. Linnenbringer, Washington University School of Medicine in St. Louis
Ian M. MacFarlane, Elizabethtown College
Vivian Y. Pan, Cook County
John M. Quillin, Virginia Commonwealth University
Julia Wynn, Columbia University Irving Medical Center
Gillian W. Hooker, Concert Genetics


To help advance research critical to the achievement of the National Society of Genetic Counselors’ (NSGC) strategic objectives, coordination and prioritization of society resources are needed. NSGC convened a task force to advance research necessary for the achievement of our strategic objectives by reviewing existing society-supported research efforts identifying gaps in current research, and coordinating society resources, the task force was formed in order to coordinate and prioritize society resources to advance research critical to the achievement of our strategic objectives. The task force developed a research agenda outlining high-priority research questions for the next 5 years. The questions are organized into four domains: (a) Genetic Counseling Clients; (b) Genetic Counseling Process and Outcomes; (c) Value of Genetic Counseling Services; and (d) Access to Genetic Counseling Services. This framework can be used to advocate for research and funding priorities within NSGC and with other key research entities to stimulate the growth and advancement of the genetic counseling profession.