Title

A roadmap for precision medicine research recruitment: Empirical assessment of the public's willingness to participate

Document Type

Article

Publication Title

Personalized Medicine

Publication Date

9-1-2020

Abstract

Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of ‘precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine. Conclusion: This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.

Volume

17

Issue

5

First Page

345

Last Page

359

DOI

10.2217/pme-2019-0125

ISSN

17410541

E-ISSN

1744828X

PubMed ID

32804044

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